SOCIAL WORK AND MANAGEMENT ›› 2024, Vol. 24 ›› Issue (2): 43-51,86.
• SHEHUI GONGZUO • Previous Articles Next Articles
YAO Hong1, ZHANG Yixin1, CHEN Liyun2
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[1] ZHENG R, ZHANG S, ZENG H, et al. Cancer incidence and mortality in China, 2016[J]. Journal of the National Cancer Center, 2022, 2(1): 1-9 [2] SANKARANARAYANAN R, FERLAY J. Worldwide burden of gynecological cancer: the size of the problem[J]. Best practice & research:clinical obstetrics & gynecology, 2006, 20(2): 207-225 [3] 曹毛毛, 陈万青. 中国恶性肿瘤流行情况及防控现状[J]. 中国肿瘤临床, 2019(3): 145-149 [4] ZENG H, CHEN W, ZHENG R, et al. Changing cancer survival in China during 2003–2015: a pooled analysis of 17 population-based cancer registries[J]. The lancet global health, 2018, 6(5): e555-e567 [5] MULLAN F. Seasons of survival: reflections of a physician with cancer[J]. New England journal of medicine, 1985, 313(4): 270-273 [6] MILLER K, MERRY B, MILLER J. Seasons of survivorship revisited[J]. The cancer journal, 2008, 14(6): 369-374 [7] MEIROW D, NUGENT D. The effects of radiotherapy and chemotherapy on female reproduction[J]. Human reproduction update, 2001, 7(6): 535-543 [8] 卢光琇, 席周欢, 刘锐, 等. 肿瘤患者的生育风险评估[J]. 国际生殖健康/计划生育杂志, 2013(6): 419-423,432 [9] STAFFORD L, SINCLAIR M, GERBER K, et al. Isolation experienced by women with gestational cancer: could peer support and tailored information be the answer?[J]. Supportive care in cancer, 2021, 29(12): 7135-7138 [10] 王彬, 江子芳, 吴雪萍. 年轻妇科恶性肿瘤患者生育忧虑的研究现状与展望[J]. 中国现代医生, 2022(24): 99-102 [11] 陈露露, 李敏. 妇科癌症患者常见的心理问题[J]. 中国医药指南, 2012(9): 58-60 [12] EKWALL E, TERNESTEDT B M, SORBE B. Recurrence of ovarian cancer-living in limbo[J]. Cancer nursing, 2007, 30(4): 270-277 [13] POORT H, FENTON A T, THOMPSON E, et al. Lived experiences of women reporting fatigue during PARP inhibitor maintenance treatment for advanced ovarian cancer: a qualitative study[J]. Gynecologic oncology, 2021, 160(1): 227-233 [14] JEFFERIES H, CLIFFORD C. Aloneness: the lived experience of women with cancer of the vulva[J]. European journal of cancer care, 2011, 20(6): 738-746 [15] SORIANO E C, PASIPANODYA E C, LOSAVIO S T, et al. Social constraints and fear of recurrence in couples coping with early stage breast cancer[J]. Health psychology, 2018, 37(9): 874 [16] BURY M. Chronic illness as biographical disruption[J]. Sociology of health & illness, 1982, 4(2): 167-182 [17] 郇建立. 慢性病与人生进程的破坏: 评迈克尔·伯里的一个核心概念[J]. 社会学研究, 2009(5): 229-241 [18] TRUSSON D, PILNICK A, ROY S. A new normal? women’s experiences of biographical disruption and liminality following treatment for early stage breast cancer[J]. Social science & medicine, 2016, 151(2): 121-129 [19] LARSSON A T, GRASSMAN E J. Bodily changes among people living with physical impairments and chronic illnesses: biographical disruption or normal illness?[J]. Sociology of health & illness, 2012, 34(8): 1156-1169 [20] CARRICABURU D, PIERRET J. From biographical disruption to biographical reinforcement: the case of HIV-positive men[J] Sociology of health & illness, 1995, 17(1): 65-88. [21] FAIRCLOTH C A, BOYLSTEIN C, RITTMAN M, et al. Sudden illness and biographical flow in narratives of stroke recovery[J] Sociology of health & illness, 2004, 26(2): 242-261. [22] 涂炯, 程瑜. 食管癌患者的疾病解释:理解、合法化与意义追寻[J]. 思想战线, 2016(3): 52-60 [23] 何雪松, 侯慧. “过坎”: 终末期肾病患者的疾痛体验[J]. 社会学研究, 2020(5): 25-50, 242-243 [24] 余成普. 社区参与、家庭责任与慢性病人的道德生活——基于一个侗寨的调查[J]. 西北民族研究, 2020(2): 88-98 [25] REYNOLDS F. Women’s narratives of living with MS in the family context: reconciling complex experiences, integrating complex identities[M]// UNIVERSITY OF HUDDERSFIELD. Narrative, memory & identity: theoretical and methodological issues. Huddersfield: University of Huddersfield, 2004: 139-151. [26] POUND P, GOMPERTZ P, EBRAHIM S. Illness in the context of older age: the case of stroke[J]. Sociology of health and illness, 1998, 20(4): 489-506 [27] ENGMAN A. Embodiment and the foundation of biographical disruption[J]. Social Science & Medicine, 2019, 225(2): 120-127 [28] MONAGHAN L F, GABE J. Chronic illness as biographical contingency? young people’s experiences of asthma[J]. Sociology of health & illness, 2015, 37(8): 1236-1253 [29] SINDING C, WIERNIKOWSKI J. Disruption foreclosed: older women’s cancer narratives[J]. Health, 2008, 12(3): 389-411 [30] WILLIAMS S. Chronic illness as biographical disruption or biographical disruption as chronic illness? reflections on a core concept[J]. Sociology of health & illness, 2000, 22(1): 40-67 [31] TAYLAN E, OKTAY K. Fertility preservation in gynecologic cancers[J]. Gynecologic oncology, 2019, 155(3): 522-529 [32] KOMATSU H, YAGASAKI K, SHODA R, et al. Repair of the threatened feminine identity: experience of women with cervical cancer under going fertility preservation surgery[J]. Cancer nursing, 2014, 37(1): 7582 [33] BURNS M, COSTELLO J, RYAN-WOOLLEY B, et al. Assessing the impact of late treatment effects in cervical cancer: an exploratory study of women’s sexuality[J]. European journal of cancer care, 2007, 16(4): 364-372 [34] AK P S, GÜNÜSEN N P, TÜRKCÜ S G, et al. Sexuality in Muslim women with gynecological cancer[J]. Cancer nursing, 2020, 43(1): E47-E53 [35] JURASKOVA I, BUTOW P, ROBERTSON R, et al. Post-treatment sexual adjustment following cervical and endometrial cancer: a qualitative insight[J]. Psycho-oncology: journal of the psychological social and behavioral dimensions of cancer, 2003, 12(3): 267-279 [36] LLOYD P A, BRIGGS E V, KANE N, et al. Women’s experiences after a radical vaginal trachelectomy for early stage cervical cancer: a descriptive phenomenological study[J]. European journal of oncology nursing, 2014, 18(4): 362-371 [37] PIVETTA E, MAULE M, PISANI P, et al. Marriage and parenthood among childhood cancer survivors: a report from the Italian AIEOP Off-Therapy Registry[J]. Haematologica, 2011, 96(5): 744-751 [38] GORMAN J R, BAILEY S, PIERCE J P, et al. How do you feel about fertility and parenthood? the voices of young female cancer survivors[J]. Journal of cancer survivorship, 2012, 6(2): 200-209 [39] ADAIR L E. Fertility decision making: to what extent do adaptations, social pressures, and individual differences influence plans to have a child?[D]. Kansas: Kansas State University, 2013:15-38. [40] SONG Y, LIU H, WANG S. et al. Correlates of posttraumatic growth among spouses of newly diagnosed gynecological cancer survivors: a cross-sectional study[J]. European journal of oncology nursing : the official journal of European oncology nursing society, 2021, 54, DOI: 102039. [41] YAO H, CHAN C H Y, CHAN C L W. Childbearing importance: a qualitative study of women with infertility in China[J]. Research in nursing & health, 2018, 41(1): 69-77 [42] GILLESPIE R. When no means no: disbelief, disregard and deviance as discourses of voluntary childlessness[J]. Women’s studies international forum, 2000, 23(2): 223-234 [43] SOMERS M D. A comparison of voluntarily childfree adults and parents[J]. Journal of marriage and the family, 1993, 55(3): 643-650 [44] WENZEL L, DOGAN-ATES A, HABBAL R, et al. Defining and measuring reproductive concerns of female cancer survivors[J]. Journal of the national cancer institute, 2005, 90(34): 94-98 [45] CARTER J, LEWIN S, ABU-RUSTUM N, et al. Reproductive issues in the gynecologic cancer patient[J]. Oncology, 2007, 21(5): 598-606 [46] GARDINO S, RODRIGUEZ S, CAMPO-ENGELSTEIN L. Infertility, cancer, and changing gender norms[J]. Journal of cancer survivorship, 2011, 5(2): 152-157 [47] 李强, 邓建伟, 晓筝. 社会变迁与个人发展: 生命历程研究的范式与方法[J]. 社会学研究, 1999(6): 1-18 [48] 陈心想, 王杰. 生命历程中的关键时刻与时间重构: 基于老年癌症患者及社会工作介入的研究[J]. 社会, 2021(2): 192-217 [49] FLEISCHMAN S. I am.., I have.., I suffer from..: a linguist reflects on the language of illness and disease[J]. Journal of medical humanities, 1999, 20(1): 3-32 [50] SCHIPKE T. The chronic sick role: its time has come[J]. OMEGA-journal of death and dying, 2021, 83(3): 470-486 [51] 曾书清. 疾痛意义建构与生命代价承受——脊髓性肌萎缩症患者的叙事[J]. 医学与哲学, 2021(4): 32-36 [52] LOCOCK L, ZIEBLAND S. Mike Bury: biographical disruption and long-term and other health conditions[M]// COLLYER F. The palgrave handbook of social theory in health, illness and medicine. New York: Springer, 2015: 582-598. [53] JEFFERIES H, CLIFFORD C. All change: the lived experience of younger women with cancer of the vulva[J]. Journal of clinical nursing, 2012, 21(15–16): 2327-2335 [54] SEKSE R J, RAHEIM M, BLAKA G, et al. Living through gynaecological cancer: three typologies[J]. Journal of clinical nursing, 2021, 21(17–18): 2626-2635 [55] MARZORATI C, RIVA S, PRAVETTONI G. Who is a cancer survivor? A systematic review of published definitions[J]. Journal of cancer education, 2017, 32(2): 228-237 [56] CHAN J L, LETOURNEAU J, SALEM W, et al. Regret around fertility choices is decreased with pre-treatment counseling in gynecologic cancer patients[J]. Cancer survive, 2017, 11(1): 58-63 [57] ANDERSON R A, AMANT F, BRAAT D, et al. ESHRE guideline: female fertility preservation[J]. Human reproduction open, 2020, 20(4): 1-17 |
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