社会工作与管理 ›› 2026, Vol. 26 ›› Issue (3): 25-35.

• 社会工作 • 上一篇    下一篇

影像发声法在精神障碍患者社区康复需求评估中的应用与启示

韩央迪1, 陈蓉蓉2   

  1. 1. 复旦大学 社会发展与公共政策学院;
    2. 马克思主义学院,上海,200433
  • 收稿日期:2025-05-23 出版日期:2026-05-15 发布日期:2026-05-15
  • 作者简介:韩央迪(1980— ),女,汉族,副教授,博士;主要研究方向:社会福利与社会政策,社会工作本土化的理论与实践,儿童青少年及其家庭发展,残障研究等。
  • 基金资助:
    国家社会科学基金一般项目“福利治理视野下社会工作服务的成效与建构研究”(18BSH145)。

Photovoice as a Participatory Tool: Transforming Needs Assessment in Community Psychiatric Rehabilitation

HAN Yangdi1, CHEN Rongrong2   

  1. 1. School of Social Development and Public Policy, Fudan University, Shanghai, 200433, China;
    2. School of Marxism, Fudan University, Shanghai, 200433, China
  • Received:2025-05-23 Online:2026-05-15 Published:2026-05-15

摘要: 在社会治理现代化背景下,精准回应服务使用者的真实需求是精神卫生服务提质增效的重要命题。然而,这一领域长期存在传统需求评估方法对于服务使用者视角的缺位,即难以有效捕捉这一人群的主体性表达与需求优先顺序。文章以上海市S社区阳光心园为实践场域,创新性地将参与式行动研究方法——影像发声法应用于精神障碍社区康复患者的需求评估实践,以挖掘服务使用者的主体性。研究发现,该方法不仅显著提升了精神障碍者的主体表达能力,更深度分析出他们在疾病自我管理、支持性就业及消除社会歧视等七个方面的迫切需求。这为赋能残疾人社会工作及广义的精神卫生事业提供了有效的实践路径,也为回应“健康中国”战略的人本诉求构建了包容共享、主体回归、系统整合的社区康复生态。

关键词: 影像发声法, 服务使用者, 需求评估, 精神障碍者

Abstract: Mental health constitutes a major public health and social concern, significantly impacting economic and social development as well as individual well-being. The efficacy of addressing this challenge largely hinges on the extent to which the needs of service users are met. Guided by a service-user perspective, this study applies Photovoice: a participatory action research method to assess the rehabilitation needs of individuals with mental disorders in a community-based setting within the “Sunshine Heart Garden”project in Community S, Shanghai. Through the construction of a program logic model and the analysis of need-assessment results, the research systematically evaluated the applicability and effectiveness of the Photovoice approach. Findings reveal that Photovoice has significantly enhanced participants’ agency and capacity for self-expression, while effectively identifying their rehabilitation needs across several domains, including: disease self-management training, perceived need for rehabilitation services, reduction of social stigma, alleviation of family caregiving burdens, attainment of valued social roles, access to high-quality psychological services, and supported employment opportunities. Furthermore, the Photovoice approach has facilitated the development of a service-user-centered mechanism for community rehabilitation. This study contributes methodological innovation to advancing mental health service provision and refining community-based rehabilitation systems, while also expanding the theoretical frameworks and operational approaches for need assessment in the empirical research paradigm of social work.

Key words: Photovoice, service users, needs assessment, people with mental disorders

中图分类号: 

  • C916
[1] 雷海潮. 国务院关于精神卫生工作情况的报告——2023年12月26日在第十四届全国人民代表大会常务委员会第七次会议上[J]. 中华人民共和国全国人民代表大会常务委员会公报, 2024(1): 162-166.
[2] 国务院办公厅关于印发“十四五”国民健康规划的通知[J]. 中华人民共和国国务院公报, 2022(16): 17-31.
[3] MUUSSE C, KROON H, MULDER C L, et al. Working on and with relationships: relational work and spatial understandings of good care in community mental healthcare in Trieste[J]. Culture, medicine, and psychiatry, 2020, 44(4): 544-564.
[4] KORTRIJK H E, MULDER N L, KAMPERMAN A M, et al. Employment rates in flexible assertive community treatment teams in the Netherlands: an observational study[J]. Community mental health journal, 2019, 55: 350-359.
[5] 民政部 国家卫生健康委 中国残联关于印发《精神障碍社区康复服务工作规范》的通知[EB/OL]. (2020-12-29). https://www.gov.cn/zhengce/zhengceku/2020-12/29/content_5650065.htm.
[6] 高万红, 李雯霞. 优势视角下住院精神病患者积极自我意识建构的行动研究[J]. 浙江工商大学学报, 2016(6): 105-113.
[7] 王久菊, 王鹏飞, 权文香, 等. 精神分裂症的语言认知特点及其脑机制[J]. 生物化学与生物物理进展, 2015(1): 49-55.
[8] WANG C, BURRIS M A. Photovoice: concept, methodology, and use for participatory needs assessment[J]. Health education & behavior, 1997, 24(3): 369-387.
[9] 习近平. 高举中国特色社会主义伟大旗帜 为全面建设社会主义现代化国家而团结奋斗——在中国共产党第二十次全国代表大会上的报告[J]. 中华人民共和国国务院公报, 2022(30): 4-27.
[10] 李川, 姚煜霞, 杨锃. 规范、能力与支持: 严重精神障碍患者个案管理的问题与对策——基于上海市H区的调查[J]. 社会工作与管理, 2023(5): 56-68.
[11] 陈玲, 刘泽伟. 精神健康社会工作服务的创新实践: 复元理论下的案例研究[J]. 社会工作与管理, 2021(6): 44-49.
[12] 武艳华, 许倩, 陈鸿英. 多元互助式精神障碍康复模式在工疗站中的应用研究——以S工疗站为例[J]. 社会工作与管理, 2020(1): 53-59, 65.
[13] TAMBUYZER E, VAN AUDENHOVE C. Service user and family carer involvement in mental health care: divergent views[J]. Community mental health journal, 2013, 49: 675-685.
[14] 陈春梅, 王彦凤, 蔡军, 等. 上海市社区精神康复机构资源及其服务现状调查[J]. 医学与社会, 2021(2): 42-45,67.
[15] ROE D, WEISHUT D J N, JAGLOM M, et al. Patients’ and staff members’ attitudes about the rights of hospitalized psychiatric patients[J]. Psychiatric services, 2002, 53(1): 87-91.
[16] 民政部, 财政部, 国家卫生健康委. 中国残疾人联合会关于开展“精康融合行动”的通知[EB/OL]. (2023-01-04). https://www.gov.cn/zhengce/zhengceku/2023-01/04/content_5734958.htm.
[17] BRADSHAW P L. Service user involvement in the NHS in England: genuine user participation or a dogma-driven folly?[J]. Journal of nursing management, 2008, 16(6): 673-681.
[18] ANDERSEN R, NEWMAN J F. Societal and individual determinants of medical care utilization in the United States[J]. The Milbank memorial fund quarterly: health and society, 1973: 95-124.
[19] BRADLEY E H, MCGRAW S A, CURRY L, et al. Expanding the Andersen model: the role of psychosocial factors in long-term care use[J]. Health services research, 2002, 37(5): 1221-1242.
[20] HUCK G, MAHR M, MORRISON B, et al. Barriers to physical activity among assertive community treatment participants: a mixed-methods analysis[J]. Journal of applied rehabilitation counseling, 2019, 50(2): 102-117.
[21] TAMBUYZER E, PIETERS G, VAN AUDENHOVE C. Patient involvement in mental health care: one size does not fit all[J]. Health expectations, 2014, 17(1): 138-150.
[22] HAEYEN S, VAN HOOREN S, VAN DER VELD W M, et al. Promoting mental health versus reducing mental illness in art therapy with patients with personality disorders: a quantitative study[J]. The arts in psychotherapy, 2018, 58: 11-16.
[23] WANG C C, YI W K, TAO Z W, et al. Photovoice as a participatory health promotion strategy[J]. Health promotion international, 1998, 13(1): 75-86.
[24] SUTTON-BROWN C A. Photovoice: a methodological guide[J]. Photography and culture, 2014, 7(2): 169-185.
[25] CLEMENTS K. Participatory action research and photovoice in a psychiatric nursing/clubhouse collaboration exploring recovery narrative[J]. Journal of psychiatric and mental health nursing, 2012, 19(9): 785-791.
[26] 韩央迪, 张丽珍, 赖晓苗, 等. 何以践行社会工作的“社会性”?——一项针对成年精障人士“老养残”家庭照料者的项目实践[J]. 社会工作, 2017(4): 35-53, 109.
[27] 朱眉华, 吴世友, CHAPMAN M V. 社会工作介入与研究的新方法: 影像发声法——以T村外来务工家庭的母亲形象项目为例[J]. 华东理工大学学报(社会科学版), 2012(4): 1-7,16.
[28] RADLEY A, TAYLOR D. Images of recovery: a photo-elicitation study on the hospital ward[J]. Qualitative health research, 2003, 13(1): 77-99.
[29] THOMPSON N C, HUNTER E E, Murray L, et al. The experience of living with chronic mental illness: a photovoice study[J]. Perspectives in psychiatric care, 2008, 44(1): 14-24.
[30] CATALANI C, MINKLER M. Photovoice: a review of the literature in health and public health[J]. Health education & behavior, 2010, 37(3): 424-451.
[31] CARLSON E D, ENGEBRETSON J, CHAMBERLAIN R M. Photovoice as a social process of critical consciousness[J]. Qualitative health research, 2006, 16(6): 836-852.
[32] DRAKE R E, GOLDMAN H H, LEFF H S, et al. Implementing evidence-based practices in routine mental health service settings[J]. Psychiatric services, 2001, 52(2): 179-182.
[33] 邓筱璇, 郑晓聪, 杨惠青, 等. 惠州市重性精神疾病患者社区规范化管理效果分析[J]. 护理学报, 2012(14): 30-32,33.
[34] VAN LITH T. Art therapy in mental health: a systematic review of approaches and practices[J]. The arts in psychotherapy, 2016, 47: 9-22.
[35] CORRIGAN P W, WASSEL A. Understanding and influencing the stigma of mental illness[J]. Journal of psychosocial nursing and mental health services, 2008, 46(1): 42-48.
[36] 韩央迪, 陈蓉蓉. 心智障碍成年子女未来安置计划的探索——基于上海市28位“老养残”家庭照料者的质性研究[J]. 福建论坛(人文社会科学版), 2022(11): 179-190.
[37] 张琼婷, 鞠康, 陶华, 等. 上海市长宁区家属支援服务对严重精神障碍患者家属的干预效果研究[J]. 中华疾病控制杂志, 2019(3): 318-323.
[38] 卢时秀, 张微. 困境与出路: 农村精神障碍患者家庭社会支持体系研究[J]. 华中农业大学学报(社会科学版), 2017(2): 83-89,133-134.
[39] DIXON L, MCFARLANE W R, LEFLEY H, et al. Evidence-based practices for services to families of people with psychiatric disabilities[J]. Psychiatric services, 2001, 52(7): 903-910.
[40] 童敏, 潘玥, 洪福平. 失独身份的解构与建构: 边缘人群参与基层社会治理的过程研究[J]. 中国社会工作, 2023(12): 24-26.
[41] CHEN C, CHEN Y, HUANG Q, et al. Self-care ability of patients with severe mental disorders: based on community patients investigation in Beijing, China[J]. Frontiers in public health, 2022, 10DOI: https://doi.org/10.3389/fpubh.2022.847098.
[42] 陈彦华, 杨琼玮, 李辉. 支持性就业服务对精神分裂症患者职业康复的疗效观察[J]. 中国全科医学, 2020(S1): 270-272.
[43] 段李博, 郑宏, 庄建林. 多学科服务团队介入严重精神障碍残疾人支持性就业综合评价指标体系的构建研究[J]. 中国全科医学, 2021(16): 2072-2076,2084.
[44] THORNICROFT G, TANSELLA M. Growing recognition of the importance of service user involvement in mental health service planning and evaluation[J]. Epidemiologia e psichiatria sociale, 2005, 14(1): 1-3.
[45] VANCAMPFORT D, STANTON R, PROBST M, et al. A quantitative assessment of the views of mental health professionals on exercise for people with mental illness: perspectives from a low-resource setting[J]. African health sciences, 2019, 19(2): 2172-2182.
[46] LEAMY M, BIRD V, LE BOUTILLIER C, et al. Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis[J]. The British journal of psychiatry. 2011, 199(6): 445-452.
[47] 精神卫生福利机构管理办法[EB/OL]. [2025-01-10]. https://www.nhc.gov.cn/zygj/c100068/202501/ec2b580dc13d4e4d8bcf5f8d5704d875.shtml.
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